Maddie’s Joy: An Angelman Journey Podcast

New episodes are released on Friday. Our podcast is available on YouTube, Spotify, Apple Podcasts, Google Podcasts, and Anchor.

In our first podcast we detail ten steps to help in your Angelman parenting journey.

In this episode I take you through Maddie's road to diagnosis. I also discuss the advice that shook me from my post diagnosis fog.

The Angelman Syndrome Foundation CEO Amanda Moore joined the podcast to talk about a variety of resources available to caregivers of all ages.

We visited an Angelman Syndrome specific clinic for the first time. We detail our experience at Children's Hospital Colorado.

In today's episode I describe how I built my community of support. You do not have to go through this alone.

On today's episode I build upon last week's episode and talk about caregiver burnout. I talk about the article "Why Self-Care Is Essential to Parenting" by Juliann Garey. I hope you enjoy this episode.

Sleep issues affect 20-80% of children with Angelman Syndrome. Based on my experience, that number is on the higher side. See some simple tips that can make a world of difference in your child's life.