Nicole is the leader of our family.

Sometimes I lose focus on the blessing that Maddie is.

Maintaining a relationship with your significant other while dealing with an Angelman Syndrome diagnosis can be difficult.

Maddie and I have been able to develop a strong relationship.

Maddie’s brand new glasses has her seeing the world in a new way.

Sometimes there can be something wrong with Maddie, but she’ll smile through the pain.

Sometimes medical appointments come at us hard and fast.

We could not face this diagnosis without the amazing Angelman Syndrome community.

An interaction at church, gave me a possible glimpse into Maddie’s adult life.

With a rare syndrome, insurance companies can be hard to deal with. This leads parents to seek a secondary diagnosis, to open up additional doors for their loved ones.